Biographical Non-Fiction posted October 22, 2024 | Chapters: |
...7 8 -9- 10... ![]() |
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childhood impact
A chapter in the book Danger is my business
Fear of deprivation
by Liz O'Neill
Background We're following Mike in his development. |
What we're eventually working on and maybe I will be able to get a hold of somebody on Monday to get him a caregiver and a case manager. I'm hopeful we'll be able to begin that process tomorrow, Monday. I was given all these numbers to call people and what the conditions might be. When I finished the page of phone numbers, because of my ADD I had no idea what I had written or what anything was going to coordinate with. It was just I was exhausted.
Mike Is not someone who's just going to sit around waiting for everybody else to do stuff for him. He went searching for an agency that might be able to help him and he found one. It sounds like someone that can be me. I'm getting worn out. Every other week I'm traveling 2 hours of Vermont roads.
But once again the universe smiled on me and a lady called and gave me the numbers I needed to call. There were only about two of them, not a whole page like the other list. I told her that I had ADD and I needed her to go slow and she said it was fine. She's going to be with me every step of the way or if she can't be, she is going to get somebody so now I'm going from I don't know what to do with step one to there may be some people that will help me with step one.
In addition to this group my brother has found another group that may cost some money but I told him he is well worth it. He may be arranging with a group of people would come in and visit him. A couple times a week for 2 hours and maybe do some work. I'm not sure but it would be good for him because the Individual from this group will be me, and I will not have to go up to Rutland 2 hours away on a Vermont Road.
There was actually a group that came in Hazmat suits to totally clear the house out of mold and mildew. The room his caretaker was in is totally empty. The best part and even my brother who doesn't experience emotions much is a little happy because they cleared away all the stuff she'd spewed around Mike's bed.
We also just got connected with VNA. Vermont Nurses Association. They are exploring Mike’s needs and one of The most wonderful helpers to come there, will be a nurse to help Mike with his ADLs. As excited as anyone can get with TBI, the head injury, Mike is looking forward to it. He's not been able to take a shower since Karen has left. He proudly told me Monday is shower day.
A note of reminder to all readers. She was his care giver for 18 years and she was wonderful til she wasn’t. She knew how to turn the handle of the shower, so it was just the right temperature. I actually hate those handles on the showers. I've been intimidated when running across them in hotels or motels. You turn the lever up and you don't know if it's going to be hot or freezing water, or nice warm water.
Mike couldn’t do that confidently, therefore he always had Karen take care of it for him. After Karen left, no one else seemed to be able to do it the right way so we're hoping this nurse, Bob, will be able to. Mike is so looking forward to Bob’s arrival.
In the meantime, we will continue as we are. When my brother's caretaker went to Alaska for about 8 days, he did fine as long as he got his food and she called him one time then she called in his meal. And he has learned how to call in his own meal. He was calling me about 15 times a day, But since he's had so many visitors coming in, he has not had to call me as much.
It's wonderful, there’s a programs called Grubhub, Instacart door dash or he calls a restaurant and someone will deliver it to his house. If he doesn't have food in the freezer until we go to Aldis again he can call the GrubHub people and they will bring him some supper.
We are both aware we have fear of deprivation. Maybe someone knows from their own experience. We just can't figure out why we have such fear of deprivation.
We're not really sure why. Our mother didn't lock our food up. She let us have whatever we wanted. For some reason we have fear of deprivation. That's why it's important for my brother to be able to just order whatever he wants to eat even if he has the refrigerator full of its stuff. He knows he has plenty and he doesn't have to worry about going without.
My brother came up with a solution for this situation which could give some insight into what may be responsible for our condition. They never ate with their father only on Sunday and holidays he came in late around the time the the little ones were preparing for bed their mother had to prepare a full supper for him.
My brother may have come up with some insight into what may be responsible for our condition. They never ate with their father only on Sunday and holidays he came in late around the times the time the little ones for the little ones to be getting into bed their mother had to prepare a full supper for him.
The little 2 and 3-year-olds stood with their chins on the dining room table watching their father gorge himself with a supper. His gig was to ask the little ones if they would like a bite of whatever he was eating. They cautiously nodded their heads yes. Then he would ask them if they liked it and they would carefully nod yes.
The next cutting game he played was when he said, "Here take it all." This brought confusion and shame to the little ones didn't know what they had done wrong. But they knew they should not have taken any of their father's food. The frequent nightly standing and staring at their father eating, had a lasting impact on them.
Fear of deprivation all-encompassing. It isn't just about food anymore.
Pays
one point
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